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Stephanie co-founded the US Indigenous Data Sovereignty Network and the International Indigenous Data Sovereignty Interest Group at the Research Data Alliance, and is a founding member and current chair of the Global Indigenous Data Alliance (GIDA). [CSR-(3] Stephanie was also a founding member of the UAs American Indian and Indigenous Health Alliance Club at MEZCOPH and the UA Native Faculty, working to support the recruitment and retention of Indigenous students and faculty at the UA. She is on the faculty advisory board for the UA’s Center for Digital Society and Data Studies and the Executive Committee for the American Indian Studies Graduate Interdisciplinary Program. Stephanie is a founding board member for the Copper River Tribal College in Chitina, Alaska.Stephanie was also a founding member of the UAs American Indian and Indigenous Health Alliance Club at MEZCOPH, working to support the recruitment and retention of Indigenous students and faculty at the UA. She is on the American Indian Studies Graduate Interdisciplinary Program Executive Committee and the faculty advisory board for the UA’s Center for Digital Society and Data Studies.Show Less
VOSviewer
Courses
- IDGIndigenous Data Governance
- IREIndigenous Research and Ethics
- IRGCPGIndigenous Research Governance: Codes, Policies, and Guidelines
- EDNBIDSGExploring Data for Nation Building: Indigenous Data Sovereignty and Governance
- IPHIndigenous Public Health
Grants
- Cultivating Equitable Responses to Increased Aridity in the US Southwest: The Climate Assessment for the Southwest (CLIMAS)
Co-Investigator (COI)
2022
$1.2M
Active - Udall Foundation Workplan 2023
Co-Investigator (COI)
2022
$875.0K
Active - Shifting from Extractive to Self-determined: Enhancing Indigenous Research and Data Governance in Southwest Climate Adaptation Initiatives
Co-Investigator (COI)
2022
$291.2K
Active - Enhancing Early Career Research Ethics to Support Indigenous Research Governance
Principal Investigator (PI)
2022
$213.0K
Active - Responsible Research and Engagement Practices for Indigenous Data Governance in Earth Science Institutions
Principal Investigator (PI)
2022
$26.5K
Active - Native Nations Institute for Leadership, Management, and Policy
Co-Investigator (COI)
2021
$900.0K
Active - AI Institute: AIIRA: Al Institute for Resilient Agriculture
Key Personnel (KP)
2021
$496.7K
Active - Developing Policy Recommendations: Indigenous Leader and Individuals' Perspectives on Research, Governance, and Data Sharing in Arizona
Principal Investigator (PI)
2021
$457.1K
Active - The Impacts of Mitigation Strategies to Prevent COVID-19 Transmission in Native American Indian Communities
Principal Investigator (PI)
2021
$34.3K
Active - Linking Health Inequities for Indigenous Americans to Colonial Subjugation to Shift Scholarly Attention to Overcoming Legacies of Structural Racism
Principal Investigator (PI)
2021
$16.3K
Active
News
- UArizona Postdoc's 50-Mile Run for Indigenous Scientists Featured in Patagonia Film
2021
- CyVerse Receives $1.3M to Provide Cyberinfrastructure and Training for New NSF Artificial Intelligence Institute
2021
- UA Native Nations Institute to Study Tribal Health Care
2011
- Research Finds Tribal Management Key to Improved Health Services
2009
Publications (78)
Recent
- Life and times of data access: Regarding Native Lands
2023
- A Landscape Analysis of State-Level School Counseling Policy: Perspectives from State Officials
2023
- Indigenous Data Sovereignty and the Open Access Movement
2022
- Reclaiming Indigenous Health in the US: Moving beyond the Social Determinants of Health
2022
- Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
2022
- Links between Indigenous Governance, Data, Environment, and Community Wellness
2022
- Elucidating symptoms of COVID-19 illness in the Arizona CoVHORT: a longitudinal cohort study
2022
- Archaeology and Social Justice in Native America–CORRIGENDUM
2022
- Archaeology and Social Justice in Native America
2022
- Environmental Health Dialogue for Risk Communication with Diné Communities following the Gold King Mine Spill
2022
- Utilizing Digital Storytelling to Develop a Public Health Professions Pathway for Native American High School Students
2022
- The impact of COVID-19 on food access for Alaska natives in 2020
2021
- Emerging ethics in Indigenous genomics
2021
- Co-producing Knowledge in a Time of Rapid Change: Lessons from the Indigenous Foods Knowledges Network
2021
- Complicated legacies: The human genome at 20
2021
- Relationships first and always: A guide to collaborations with Indigenous communities
2021
- Indigenous Sovereignty in a Pandemic: Tribal Codes in the United State as Preparedness
2021
- Post COVID-19 implications on genetic diversity and genomics research & innovation: A call for governance and research capacity
2021
- A Dialogue of Ways of Knowing: Shifting Power for Long-Term Resilience
2021
- Expanded ethical principles for research partnership and transdisciplinary natural resource management science
2021
- Operationalizing the CARE and FAIR Principles for Indigenous data futures
2021
- The SEEDS of Indigenous population health data linkage
2021
- Indigenous data sovereignty and policy
2021
- Indigenous Peoples' Data During COVID-19: From External to Internal
2021
- Using Indigenous Standards to implement the CARE Principles: Setting Expectations through Tribal Research Codes
2021
- Case Report: Indigenous Sovereignty in a Pandemic: Tribal Codes in the United States as Preparedness
2021
- An Expanded Set of Ethical Principles for Transdisciplinary Social-Ecological Research
2020
- Tools to Promote Equity and Best Practices
2020
- CARE Principles for Indigenous Data Governance
2020
- Indigenous Data in the COVID-10 Pandemic: Straddling Erasure, Terrorism, and Sovereignty
2020
- Entwined processes: rescripting consent and strengthening governance in genomics research with indigenous communities
2020
- Data sharing respecting Indigenous data sovereignty
2020
- Special Issue on COVID-19 and Indigenous Peoples: COVID-19 and Indigenous Peoples: Tools to Promote Equity and Best Practices
2020
- Special Issue on COVID-19 and Indigenous Peoples: Impact of and Response to the Pandemic
2020
- Native Nation Rebuilding for Tribal Research and Data Governance
2020
- Working with the CARE principles: operationalizing Indigenous data governance
2020
- The CARE principles for indigenous data governance.
2020
- How are we supporting Indigenous data stewards?: Aligning Indigenous and federal environmental science research ethics guidelines
2020
- Research full report: American Indian reservations and COVID-19: Correlates of early infection rates in the pandemic
2020
- Introduction: Impact of and response to the pandemic
2020
- Operationalizing the CARE Principles for Indigenous Data Governance in Open-Data and Open-Science Environments
2020
- Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group
2020
- Indigenous Foods Knowledges Network: Facilitating Exchange between Arctic and Southwest Indigenous Communities on Food and Knowledge Sovereignty
2020
- Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
2020
- American Indian Reservations and COVID-19: Correlates of Early Infection Rates in the Pandemic
2020
- 1 Indigenous Data Sovereignty, governance and the link to Indigenous policy
2020
- 15 Embedding systemic change—opportunities and challenges
2020
- Access and Management: Indigenous Perspectives on Genomic Data Sharing
2019
- The CARE Principles for Indigenous Data Governance
2019
- Good data practices for Indigenous data sovereignty and governance
2019
- Genomic research through an indigenous lens: understanding the expectations
2019
- Indigenous data sovereignty
2019
- The Indigenous Food Knowledges Network: Building Indigenous Led Collaborations across Biomes
2019
- Indigenous Data Governance: Strategies from United States Native Nations
2019
- Building an Indigenous foods knowledges network through relational accountability
2019
- Decolonizing Health Equity through Indigenous Voice and Vision
2018
- Using Data Sharing Agreements as Tools of Indigenous Data Governance: Current Uses and Future Options
2018
- Indigenous Data Sovereignty: How Scientists and Researchers Can Empower Indigenous Data Governance Posters
2018
- Indigenous data sovereignty: How scientists and researchers can empower indigenous data governance
2018
- Stewarding Indigenous Data: Resolving Tensions between Open Data and Indigenous Data Sovereignty
2018
- Supporting Tribal Data Governance for Community Resilience: A Southwest Indigenous Climate Summit
2018
- Perspectives on linkage involving indigenous data
2018
- The Indigenous Foods Knowledges Network: Supporting Indigenous Scholars through Research and Academic Innovations
2018
- How We as Indigenous Peoples Challenge Science
2018
- Resilience, Sustainability, and Indigenous Communities: Knowledges in Dialogue for Environmental Research, Assessment, and Planning
2018
- Policy Brief: Data Governance for Native Nation Rebuilding (Version 2)
2017
- The Role of Reconciling Values in Efforts to Build Community Resilience to Global Environmental Change
2017
- Data as a strategic resource: Self-determination, governance, and the data challenge for Indigenous nations in the United States
2017
- Data as Strategic Resource: Self-Determination and the Data Challenge for United States Indigenous Nations
2017
- Policy Brief: Indigenous Data Sovereignty in the United States
2017
- Improving Public Health Frameworks through Investments in Tribal Public Health
2017
- Reframing return on investments for tribal colleges and universities: Aligning analyses with tribal priorities and educational missions
2016
- The changing landscape of health care provision to American Indian nations
2015
- Residence, Community Engagement, and Citizenship: How Do Non-Resident Tribal Citizens Connect with Native Nations
2015
- Promoting family and community health through Indigenous nation sovereignty
2015
- Per capita distributions of American Indian tribal revenues: A preliminary discussion of policy considerations
2008